One Tough Cookie!

I would like to introduce you to the toughest little girl I know...her name is Ameliah and she is only 7 years old.



This picture was taken on her 7th birthday

On the week of August 10th we had the stomach flu go around our house. Ameliah got just a touch of it on Sunday, the 12th so I kept her home from church. The 13th was her birthday and she seemed to be feeling better, so I sent her to school. That morning, I took the Barbie cupcakes she requested to her class. She didn't eat a cupcake with everyone, which was not usual for her. Later that afternoon, I got a call from the nurse saying that she had a fever and just wasn't feeling well. Oops, I guess she wasn't feeling better yet.

So I got her home and she was complaining that her stomach hurt and she threw up. I couldn't get her to eat or drink anything and all she wanted to do was sleep. When her fever got high, I would give her Advil. When she wasn't feeling better by Wednesday I was concerned. Todd was out of town so I was doing this by myself. I didn't want to take her to the doctor because I just knew it was the flu and that is a virus and there is nothing the doctor can do for a virus. Well, that afternoon she threw up again and she peed the bed. This little girl NEVER pees the bed, so I got her into the doctor that day.

He looked at her, felt her abdomen and agreed that it was likely just the flu hanging on. He did a urine test in his office and determined that she did not have a bladder infection or urinary tract infection. He said to keep her hydrated and to come back if she didn't get better. I went home and for the next few days I woke her up every fifteen minutes to give her water and Gatorade.

Todd got back in town on Sunday night. On Monday she started to get up and wanted to eat. Yea! Finally, this girl was getting better. But then she would get a fever, or want to go back to bed. Although she showed improvement, we still didn't feel like she was well enough to send her back to school.

On Wednesday, the 22nd, we took her back to the doctor. He checked her abdomen again and again he ruled out appendicitis. But, she had lost 3 pounds since her well visit just a few weeks before. He said that she just didn't look well, so he wanted her to get some blood work done. We left right from the doctor's office and went right to get her labs done. We had to wait until 5:30 that evening to hear back from her doctor. He said that her white blood cell count was at 21 and 12 to 14 is what it should normally be. He recommended that we go to Carden Children's Hospital to have a chest x-ray and other tests done. He thought maybe she had pneumonia that they didn't catch.

Todd and I took her that night at about 7:00 to the Emergency Room. When we got in to the first ER room, a specialist came in right away and felt her stomach. He said that her symptoms sounded like a perforated appendix and that they were not going to do a chest x-ray, but they were going to do a CT scan instead. Wait a minute...perforated appendix? Doesn't that mean a ruptured appendix? I thought you died if your appendix ruptured! He said that often, especially in young children, when the appendix ruptures the body "walls off" the infection.

The next few hours that we waited for her CT scan dragged on forever! She had to drink the liquid and wait two hours for the scan. Finally, she had her scan. We didn't have to wait long before that same specialist came and got us. He showed us her scan on the computer. Sure enough, her appendix had ruptured and had been that way for probably a week! How did this happen without us knowing? I thought when people got appendicitis that they were in a lot more pain than she was. She wasn't screaming and she could walk and talk and eat.

He showed us her abscesses on the scan and said that when the abdomen is that infected and inflamed that they can't do surgery without having to take other things out, too. What they do instead is put drains in the abscesses and leave them there for a few days to drain all the infection that they can. They would also start her on two different antibiotics.

So the next day, they put in one drain in the front and one in her right bum cheek. They also placed a PICC line in her left arm. When she got back from her procedure, an x-ray tech came in and took an x-ray to make sure the PICC line went into the right place. Nope, it didn't. Ok, so what do we do? Well, we pull it back and try again. The only problem was that she was asleep when they inserted it, but now she was wide awake and a little scared. She kept saying that she could hear water. I don't know how many times they pulled back on that line and pushed it back up to her ear before it went the right way. Another x-ray showed that it was in the correct vein, but that is what they call a "midline". Normally the PICC should land right above the heart, but hers did not. Hers ended up under her left clavicle. Again, what do we do now? I was afraid that they would pull it completely out and start over. It's pretty overwhelming for a 7 year old to go through all of this. They decided to leave it since she wasn't going to be fed through the PICC, it was just for her medication.

This was right before her first two drains were placed.

 The next morning, the surgeon came in and informed us that they did another CT scan and she had another two more abscesses that they previously thought were bowel. One was very large and would also need to have a drain put in it. The last one was in a place that they could not get to without going through bowel or colon, and they didn't want to do anything to irritate her already "hot" stomach. So later that day she had another drain put in the one they could get to. They said that hopefully the antibiotics and her body would take care of the other one.

This picture shows her three "grenades". That's
what they called her drains.

We had to wait a long time for her to come out
of her anesthesia.

We got there on Wednesday night and they did not let her eat ONE bite of food until Friday, midday. That was so hard for me. She kept asking to eat and I had to tell my baby "No". You better believe that every time the nurses asked us if we needed anything, I told them to find out when she could eat. They wouldn't even let her drink water. She did have fluids going in through her PICC, but her mouth was so dry and I couldn't give her anything. So. Not. Cool.

She was so sad for the first few days. She did
not want to get up and walk around or go to
the bathroom.

 

Once they let her eat, she was more willing to do what they asked. They told her they needed her to walk around to make sure she didn't get pneumonia. She wasn't in love with the idea, but she did it. The nurse fashioned a loop that we safety pinned to her shirt that the drains could hang from so that they didn't get pulled.

A tender moment with daddy.

 Because she had a "clean" illness, they let her go to the 7th floor which is the Oncology/Hematology floor. They have to keep that floor really germ free because of the children that are on chemo. They also had really cool perks that they don't have on all the rest of the floors. They had a prize room that they let the kids go in to pick a toy for being so brave and enduring so many scary and painful things. While we were in there, Ameliah showed me her left hand. It was swollen. I checked it out and her whole arm was swollen. I showed the nurse and she guessed that it was because she was laying on that side because of the drain that was in her right bum.

Thank goodness she already had an ultrasound scheduled for the next day on her abdomen. While she was in there, they took an ultrasound of her arm and found that she had a blood clot right under her clavicle from her PICC. Are you freaking kidding me?! They did a bunch of blood tests and determined that she does not have a genetic predisposition for blood clots. It was simply a clot caused by the PICC. That day, she had to start getting blood thinning shots twice a day. AND, when she went home, I would have to administer them to her. The nurse brought in some syringes and a sponge for me to practice with.

What else does this little girl have to experience? Well, I'll tell you...they also found three large gallstones. I have never heard of a 7 year old with gallstones. The surgeon on duty said that they would "just" remove the whole gallbladder when they took out her appendix in 6 weeks. I know enough about that to know that there is no way I'm gonna let them take her gallbladder out. I also know that there are ways to pass gallstones.

Hanging out with baby brother Duke. The
hospital gave her this quilt that someone hand
made and donated.

Hanging out with her brothers.

She loved when cousins came to visit.

Going on a walk with Sayler.

This is another handmade quilt someone donated that they
gave her.

She was sad, but after a few days there she was ready for visitors. When they would come, she would light up and look more like the happy girl we know and love. Sayler came almost everyday that we were there. They both really loved their visits.

With Duke and Mom in the playroom.

The hospital has a program called Child Life. They have employees and volunteers. They open the playroom every day and often have activities for the children to do.

Starting to feel better

 

Playroom art project.

 

They had an artist come in one day for a special art project. He showed them pictures of henna art and had them trace their hand and design their own henna art. She had help tracing her hand, but did the rest of this herself! I thought it was stellar work for a 7 year old. The artist said it was among the best he'd ever seen for kids of all ages and they kept it to display in their art gallery. This was a fun distraction for her, because she is already a little artist.

She loved playing in the playroom.

Right after her last ultrasound. There's our
happy girl!

Her last drain came out on Friday, the 31st. Taking the drains out was a scary thing for her. Taking off the bandages over them was really scary for her, too. They were really big and really sticky. I just reminded her to breath and she took it like a champ. They took her PICC line out, too and she had to lay still for half an hour because of her blood thinners.

Finally! After a week and a half in the hospital she was ready to come home!

 

This girl took her shots like a champ! In fact, she started doing them herself. I know I certainly would not want to give myself a shot, but she did it. Now she is off the blood thinning shots and takes one blood thinning pill a day. Which, by the way, she is awesome at! I don't know many kids that can swallow a pill!

 

I was referred to a Nutritionist by a friend who looks at live blood under a microscope. I took her in and we looked at her blood. He recommended she take digestive enzymes and a liver/kidney cleanse. I also bought a fruit and veggie powder that has 8 servings of fruit and veggies per serving. I have been giving her those every day. He was confident that we could get her fixed without having her gallbladder removed.

 

My mother-in-law suggested some foods that would be good for gallstones and my sister-in-law recommended some essential oils to use.

 

Ameliah had a follow-up ultrasound before her appointment with the surgeon. Before we started, I told the ultrasound tech that she had 3 large gallstones. She told me that she was not allowed to tell me anything about whether or not they were improving. She started the US and said, "Who told you she had gallstones?" I told her that she had actually done the last ultrasound and that I saw them. Then she asked what I was doing to treat them. I told her that she was taking some enzymes and a natural cleanse. She left the room when she was done and showed the pictures to the doctor and the doctor sent her back in to take more pictures. She said that the doctor wanted to know what I was doing. She took a few more pictures and left the room. Then she came back with the doctor and the doctor did the US! She could not believe it...two of the gallstones are completely gone! She made Ameliah stand up and she was shaking her around trying to find where those other two were hiding. I was laughing inside, because I'm sure that this does not happen very often! After a few minutes, she finally decided that two of them were gone and the the third one looked like it was breaking in half.

 

We met with the surgeon a few days later and she said that she was fine with leaving the gallbladder alone as long as I am aware of it and will stay on top of it. It feels like such a victory that I was able to find some natural remedies and have her progress so much in such a short amount of time.

 

This week she had an ultrasound on her arm to see if her blood clot is gone. This time we had a different US tech and she showed me where the clot had been. She said that when they are new, they have the possibility of breaking off. When they have been there a while, they get kind of sticky and stick to the vein, which is what Ameliah's has done. She said that it just makes the wall of the vein a little bit thicker. She said that she is getting blood flow through it. I left feeling very encouraged. We have a follow-up with a Hematologist next week. I'm hoping that she will take Ameliah off the blood thinner because I have her surgery scheduled already. If she can get off the blood thinners, then she will be able to have her surgery as planned.

 

When I think about this whole experience, I feel extremely blessed. I know that there are so many things that we are dealing with, but I'm just grateful that we didn't lose her. If her body hadn't walled of the infection, she would have died, because the infection liquefies everything it touches.

 

I'm also grateful to the major outpouring of love and support and prayers we have received and are continuing to receive. So many people have sent gifts or visited in the hospital. The Relief Society had dinners sent over. But the biggest help was from my sweet mother-in-law. She watched the boys for me the whole time so that I could stay at the hospital with Ameliah. I really appreciate her constant support and sacrifices she makes for us. One of the times that Todd brought the boys to the hospital to visit, Cannon told me about how much fun he was having. We are in good hands!

 

Our little girl is so brave and takes it all in stride. She knows that she is going to have surgery and she has accepted it. She knows it will hurt, but she plans to just breath and try to relax through it...

 

...and that is why she is the toughest little girl I know!